Anthony Scott Bowers was born on
February 4, 1994.
He was a premature baby weighing
4 pounds 12 ounces. He was a normal happy healthy baby. He
was always getting into things which led to a bad
accident. When he was a year and half, he pulled a hot
boiling pan of water down and caused a 3rd degree burn all
on his right side of his body missing his face. Then began
his troubles of being in and out of the hospital for his
weight. He also had a speech delay which lead him to be in
a special school to help him with it by the age of 2. We
also started noticing him being sensitive to the sunlight
which caused severe burns on his face. No doctors around
could figure out what was going on.
In 1996, we
moved from Arkansas to Tulsa, Oklahoma and he began seeing
Doctor Caldwell. There were several miss diagnoses
including Cerebral Palsy. Around the age of 6, Dr.
Caldwell ordered a skin graph to test him for Cockayne.
Finally at the age of 7 we found out what was going on. So
from 2001 it has been a learning process to cater to his
In 2004, he was riding on a bicycle
with a neighbor, which led into a
bad bike accident and he was life
lighted to St. Francis Hospital. He
was bleeding inside his head and it
was the scariest 10 days of our
lives, not knowing what the outcome
was going to be but he fought
Soon after his
bike accident, he started having
seizures. In 2007, he completely
lost his hearing, so we signed up
for the Cochlear. From 2007 to
February 2008, he was wearing
hearing aids. In 2009, he had to
start using a walker to walk because
he has lost his ability to walk all
together. Now he is a fun loving boy
that enjoys life. Everywhere he
goes, everyone knows and loves him.