Introducing the one and only
CAMERON!! Cameron was born in July 1997, he was diagnosed
soon after with Cockayne syndrome type 2.
lives near Blackpool, he has the most fantastic sense of
humour and a very dirty laugh. Cammy loves animals and has
many pets including 4 dogs, 3 cats, a rabbit and a
hamster! He has two brothers that he loves dearly. Cams
favourite things to do are play his playstation, flirt
with the girls, watch his huge collection of films (he
loves Barney and Thomas the tank), and ride his trike
always shortly followed by his Mum Joline chasing after
Although Cameron was diagnosed with type 2 CS he has already
doubled his highest life expectancy.
Cameron can not talk but he has learnt some sign and those who
know him well can easily understand what he wants, he has never
walked but can ride his trike at top speeds and has no trouble
scooting around on his bottom! Cam eats and drinks orally and is
still surprising us all with his amazing ability to concur all
obstacles put in his way.
We love you Cameron, and every
day with you in our life is another filled with laughter, love and