? Amy and Friends - Cockayne Syndrome Support

  Meet the lovely Carly who lives in Swansea with her Mum Vikki, Dad Andrew and big sister Nicole.
 
Carly loves High School Musical, playing her music (loudly!), her favourite colour lilac and her laptop!

Carly's mum describes her as "sunshine" and everybody who meets her loves her!

Our lovely Carly became a butterfly in March 2011 - sadly missed by all who loved her (and that sure was everyone she met).

Carly, Our little friend won her fight against Cockayne Syndrome and is now free to run and play in heaven.