This is about a very special
little girl in my life.
Chloe is my six year old
grand daughter was born June 9th 2005. Chloe was diagnosed
with Cockayne Syndrome type2 when she was 2 years old. She
is a very happy little girl who loves everyone she meets.
She can not talk but she definitely can communicate in her
own way. She may only weigh 20 pounds and stand only 2
feet tall and not walk but she has learned to get around
very well on her own. Just like many others with her rare
syndrome she has learned to adapt and love
unconditionally. She is going to school and loves it
especially the part of being around other children.
There is so much joy with in her and she has brought so much light
to our family it is hard to put in words. One word that does comes
to mind is LOVE when you meet her.
She has blonde hair and big blue
eyes that just take you in. There is
just so much more to say on her I
could go on forever but the one
thing that definitely stands out is
Chloe's personality and her
compatibility to love.