Elias has born in 2006 and
diagnosed CS in 2008. Our family consists of mother Titta,
father Petri and big brother Eino. We live in Finland
where Elias is our only CS child. Elias spends time in the
day care and loves his nanny and other kids there. Elias
likes other children and always wants to hug them. He
blows a kiss easily to people who he likes.
has had a feeding tube fitted in 2010 and he weights about
10 kg and height is about 85cm. His eyes are very
sensitive for light and skin is sensitive for UV-light.
Elias can hear normally. He doesn't move himself, so he
can't walk or crawl.
Elias is very active to detect things and places at home eg.
cupboards. He very impatiently sets the table so that he sits in
his chair and together we move dishes one by one onto the table.
Elias is loved by all that meet him, including every one from the
Amy and Friends retreat 2010.
Elias, Our little friend won
his fight against Cockayne Syndrome and is now free to run and
play in heaven.