? Amy and Friends - Cockayne Syndrome Support

  Hi my name is Ella I was born in January 2007 and was diagnosed with CS in Dec 2012.

I am always happy and love to sing and dance. I enjoy going to school and love to take my babies with me everywhere!

I have limited vocabulary but am learning Makaton. I walk with a Kay walker and in the summer if 2012 had my feet operated in as they turned in. I wear splints every day.

I have such a loving and supportive family, my Mummy Jodie, my Daddy Luke, my little brother Alex and a new baby sister on the way, my grandma's and grandpa's, aunties and uncle and my Nanna who tell me I give the best kisses and cuddles!

I am looking forward to meeting my new CS family xxx