Amy and Friends - Cockayne Syndrome Support Amy and Friends - Cockayne Syndrome Support
























Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.

 

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  Erik Peter Daniel Kjorling

Erik was born on February 6, 1991 in New Orleans, Louisiana. He is a young boy who enjoys music, girls and has a tremendous love for his family.

His vision failed and he is no longer enjoying the outdoors like he used to. It amazes us that even after losing his vision, poor hearing, almost lost speech and limited mobility he still has a smile on his face, and desires to connect with people just to give them a big hug.

There is so much so say about Erik but hard to accomplish it in few lines. He has definitely changed the way we see life, brought other values into our life, tough us to appreciate things that maybe under “normal” circumstances would have gone unnoticed.

His love is pure and sincere, always, thanking me when I do things for him and he is always prompt to say “ I love you Mom”.

   
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Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746