Amy and Friends - Cockayne Syndrome Support Amy and Friends - Cockayne Syndrome Support
























Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.

 

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  Gabriela: My daughter was born in February, 7 2003 in the Dominican Republic.

During her first month she was a normal baby. She use to try to eat by herself, crawl, say little words that were clear for her age, but she started to get older but her ability to walk or talk didnt increase.

Until 2009 when she immigrated to the United States, we were able to visit several specialist. At the age of 6 she was diagnosed with Cockayne Syndrome-B. My daughter Gabriela can't walk, hear, and shes partially blind. She does recognize her family.
She loves to play outside with her cousins and she also loves the pool. Shes a very sweet girl, and she gets very excited when she hears the rythm of any type of music. Shes my butterfly.

   
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