Gabriela: My daughter was born in February, 7 2003 in the
During her first month she was
a normal baby. She use to try to eat by herself, crawl,
say little words that were clear for her age, but she
started to get older but her ability to walk or talk didnt
Until 2009 when she immigrated to the
United States, we were able to visit several specialist.
At the age of 6 she was diagnosed with Cockayne
Syndrome-B. My daughter Gabriela can't walk, hear, and
shes partially blind. She does recognize her family.
She loves to play outside with her cousins and she
also loves the pool. Shes a very sweet girl, and she gets
very excited when she hears the rythm of any type of
music. Shes my butterfly.