Amy and Friends - Cockayne Syndrome Support Amy and Friends - Cockayne Syndrome Support
























Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.

 

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  Jace is 14 years old. He is very girl crazy and likes girls who are 19 to 20 years old. He is obsessed with money, cell phones, and pocket knives.

Jace has lost much of his mobility now. He has difficulty walking without help, and suffers from a tremor. He still loves to ride his 4 wheeler, and his horse. He loves his dog "Bagheera".

Jace has 3 brothers. Preston is 17, Dylan is 11, and Jaxon is 8 months. Jace attends a special needs school, and has a full time aid from the school for the deaf.
We live in a small community, and it is such a blessing. Our community really rallied around us when we found out that Jace has CS. Jace is a local celebrity, and loves to hug everyone. Sometimes he hugs strangers, but they usually love it. Jace is an amazing little spirit that brings out the best in just about everyone he meets. People are drawn to him, and he has an amazing effect of people. He is truly a gift in our lives.

   
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Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746