||Jebabli Kheireddine – 21/07/1995
It is not easy to describe Kheireddine
, ALLAH bless his soul. Like all CS children, he was
amazing. He is my younger brother, but was more than a
brother to me; I helped bring him up with the same love
and guidance, as any mother would do.
was born 6 to 7 weeks earlier at home, with no problems,
on July 21st 1995 in Tajerouine, EI Kef, TUNISIA (North
east of Tunisia), and he passed away on May 24th 2010. His
birth weight was 1.8kg, I remember his tiny body and head,
his little fingers, toes and soft skin!
had many health problems from birth; at the age of 2 he
saw a new doctor and he was diagnosed with Cockayne
syndrome. The doctor said it was the second time he had
seen the syndrome as he had met a sufferer in Paris.
Kheireddine’s smile and the wonderful moments we had with him
throughout his life make us forget all our sorrows. Those who met
him at first felt sorry for him; however, we were happy that we
had the chance to have such an amazing baby in our lives. We could
have never known the joy this special boy was going to bring to
our lives; we have been left with many fabulous memories.
Kheireddine was well known in our small village. He was loved by
all, and enjoyed giving hugs and kisses to every one. One of his
favourite pass times was listening and dancing to music ;he used
to play with his fingers like a pianist.
Family was a big
part of Kheireddine’s life. He had a very strong relationship with
his mother. For the first 12 years of his life he constantly
wanted to be in her company: they eat , slept and bathed together.
He especially loved giving his mother kisses for being such a
special one, always caring for him and understanding his needs. He
loved being kissed by his Father , especially neck kisses. His
favourite time of the day was going on walks with his brother; he
didn’t like to see his brother sad.
In his last 3 years on
Earth he became so calm; he didn’t like to play as before. He used
to sleep during the day and he get up at night. He prefered
sleeping next to someone, and to feel him so close because he
sought protection. He had problems with his eyes; he couldn't see
clearly and he didn’t like light .
We all know
that to each beginning there is an end. Kheireddine came to this
life suddenly and so was he gone. He had breathing troubles and in
2 days God called him back. I remember the first time I saw him I
had tears in my eyes, and the last time I saw him alive he had
tears in his eyes. Maybe he wanted to say the last good bye and he
In short, Kheireddine has gone from our touch,
but not from our hearts. We sheltered him with tenderness, we love
him , and for the happiness we've known with him, we shall forever
be grateful. I’m so happy that God gives me the chance to have
such an amazing brother like him and he will stay alive forever in
my heart. Thanks God for everything and may god bless his soul,
hoping that he is enjoying his new life in heaven.