? Amy and Friends - Cockayne Syndrome Support

  Hi everybody my name is Jessica I am 5 years old. I have CS 1.

I like doing lots of things but most of all making people happy. I have limited communication and can say lots and lots of single worlds but can clearly make my self understood. I go to school and have lots and lots of friends.

I have a big smile and a big heart and I love life and live it to the full even though my health is deteriorating my spirit and courage like all my friends gets stronger and stronger.