? Amy and Friends - Cockayne Syndrome Support

  This is Josie. Josie she lives in Kent with her 2 older sisters, her mum Gill and dad Alan. Josie is a fantastic ballerina and loves to put shows on for everyone to watch. Josie has late onset CS.
She had her wish granted when she became a princess at Disneyland.  She loved meeting other CS children in July 2007 and sat hugging everyone she met!