Julie: My name is Julie. I was
born in 2007 and come from Germany.
I am still
without a diagnosis. But two professors in Germany are of
the opinion that I am suffering with Cockayne syndrome.
Although I have many problems, I do not let it get
me down. Usually I am in a good mood and laugh a lot and
enjoy being with other people. Every day I go to the
kindergarten, build a lot with Lego Duplo and like to
paint colorful pictures.
I also love beach holiday
in Denmark, listening to music and dancing with my sister
using my walker. My little sister is Lya, She is two years
old. We have a lot of fun together, but can also fight as
My parents are very proud of me and my sister. We look forward to getting
to know all of the Amy and Friends family. Maybe they can help us
to get certainty.