Amy and Friends - Cockayne Syndrome Support Amy and Friends - Cockayne Syndrome Support
























Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.

 

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  This is Macie.

Macie was born on 01/02/2015 at 19:41 with this beautiful mop of hair and it has not stopped growing since!

Macie was diagnosed in November 2015 with Cockayne Syndrome Type 2 and from that day forward we've never taken a day for granted. Macie is such a sweetie and would much rather sit and have a cuddle than play with any toy (though her space blanket is a close 2nd!).

Macie's has a big sister called Kayla and their relationship is just heartwarming. They adore the bones of eachother and will sit and chat all day long.
We don't know how much time we have left with Macie but we take each day as a blessing and make as many memories as possible.

She is an amazing little girl and very much adored by many ❤.

 

   
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Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746