born on 01/02/2015 at 19:41 with this beautiful mop of
hair and it has not stopped growing since!
diagnosed in November 2015 with Cockayne Syndrome Type 2
and from that day forward we've never taken a day for
granted. Macie is such a sweetie and would much rather sit
and have a cuddle than play with any toy (though her space
blanket is a close 2nd!).
Macie's has a big sister
called Kayla and their relationship is just heartwarming.
They adore the bones of eachother and will sit and chat
all day long. We don't know how much time we have left
with Macie but we take each day as a blessing and make as
many memories as possible.
She is an amazing little
girl and very much adored by many ❤.