Amy and Friends - Cockayne Syndrome Support Amy and Friends - Cockayne Syndrome Support
























Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.

 

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  Marc was born on 30 December 1964 in Jersey, Channel Islands. He was able to hold conversations and had a very good memory of events. Marc is proof that it is possible for some CS children to have a good quality of life and to live on past expectations because Marc was 37 years old when his parents lost him. 


   
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Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746