Amy and Friends - Cockayne Syndrome Support Amy and Friends - Cockayne Syndrome Support
























Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.

 

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  Michael Sampson is 27, and grew up in Southborough, MA with 2 brothers and 1 sister.

When he was younger, he LOVED playing baseball, football and riding and building go-carts.
He is the number 1 fan for the Boston Red Sox, he knows every player's name, and has never missed watching a game.

Mikey has a huge heart, and you'll always see him with a smile on his face!
He loves listening to music, very loudly! Some of his favorite band are; VanHalen, Aerosmith, Michael Jackson, Ozzy, and MANY more!
Mikey was diagnosed with Cockayne Syndrome when he was 24. Since then, he has been in and out of the hospital more times than I count, but he stll has a HUGE smile on his face.
He went on the CS retreat to Texas in 2010, and he had the time of his life meeting all of the other CS kids!
 
Mikey is an awesome person, a wonderful son, caring brother, and sweet uncle to his niece. We all love him very much!

Michael Sampson, Our little friend won his fight against Cockayne Syndrome and is now free to run and play in heaven.

   
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Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746