He was diagnosed with CS at age 4 ˝ years. Nathan is a great
little boy with a very social personality.
He loves to give lots of hugs and
kisses, but be careful as some
kisses turn into bites. He comes
with many accessories: hearing aids,
glasses, DAFOs, a mickey button, an
eye patch, hand splints, and a
He does not eat
my mouth at all, nor does he walk or talk. We used to work
on his feeding all the time until we found out his
diagnosis. He can walk using his walker. He loves to walk
to the TV.
He has had 4 surgeries. One to get his
mickey button placed, and 3 for his eyes. In the surgeries
for his eyes, it was to get his eye lashes out of his
eyes. He did not have cateracts like many CS children.
Nathan has many favorite toys, balloons, a plastic red
fire engine, books and a musical Fisher Price toy. He also
loves animals, water and bubbles. He will play on his own
for about 15 minutes, but really wants 100% attention all
the time. Nathan also loves Signing Time and Baby Einstein
videos. He also loves his sister very much and loves to
pull her hair and annoy her.
He loves school, and
gets excited when the school bus comes to pick him up. He
attends school every day. Nathan has physical therapy once
a week and occupational therapy twice a month.
Nathan was fortunate to have a wish granted in his
honor through Make-A-Wish Mid Atlantic. We all went to
Give Kids the World in Florida on his birthday in 2010 and
had a great time. Nathan knew very well it was a special
trip in his honor.
More recently Nathan has
lost his 2 front bottom teeth, and about a month ago we
got a fish. His daily job is to feed the fish every
morning. Nathan is currently doing well health wise, but
we always worry about him. We love him.