? Amy and Friends - Cockayne Syndrome Support

  Meet the handsome Nick! Nick is Amy's beloved!

The happy couple met in 2006 at at conference in Boston, USA and last year 'tied the knot' in a beautiful ceremony.

Nick lives in Texas, he has CS1 and, although a little slower to sit up/walk etc. he is very good at getting around now!

He loves his dirt bike and his rock 'n' roll!