Pep was born on 28th October
2010, and since then, our life has changed a lot. I would
lie if I tell that has been an easy process, but the truth
is that Pep has brought more joy and happiness to our days
than anything else in the world!
As soon as he was
born, Drs. found out that he had hearing loss, and when he
was 4 months, they discovered dense and bilateral
cataracts in his eyes. That was the start of our story
with hospitals and investigations on Pep’s
diagnosis.....Through the years, he has been growing
slowly, experiencing life with all his energies, playing
and laughing with Clàudia, his sister; with our loving
family; with friends at school and in our town, traveling
around the world with us!
We wouldn’t change a thing of it all, the love he is able to
express and share is amazing. Most of the goals he has achieved
are due to the force of his love: being able to say his sister’s
name, running with his walker at the playground with his friends;
standing the hardest moments with a smile in his sweet face.
We knew he had CS a year ago, on November 2015, and at that
point, we started the second part of our journey: learning about
CS and then, forgetting almost all, to just concentrate on Pep and
how he is today.
The third part of the trip is starting now, after
meeting our new CS family in Manchester, thanks to
Amy and Friends.
The experience has blown our hearts, impossible to
describe! Sharing a weekend with other kids with CS, meeting other
families, getting in touch with doctors who know the syndrome and
so much more!
So, we are on the road, traveling with Pep
and Clàudia, and all CS families. Let’s enjoy it!.