Amy and Friends - Cockayne Syndrome SupportAmy and Friends - Cockayne Syndrome Support

Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.



Metronidazole (also known as Flagyl® or Metrolyl®) may cause acute liver failure in children with Cockayne syndrome and should be avoided. Please alert your doctors to this.

Health professionals can obtain further information from Dr. Brian Wilson Any further drug reactions in this patient group should be reported to the regulatory authorities in your own country.
Amy and Friends will be paying for 2 nights accommodation/meals/coffee/tea/juice and activities – further nights are to be paid personally at £119.50 per night. Please note this is to be paid in advance to Amy and Friends by 1st August 2017.

Please make a donation by clicking here!

Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746