? Amy and Friends - Cockayne Syndrome Support

  This is Shane Suckley aged 7 years and lives with mum, dad and two sisters in Wrexham UK. This was the first time he had meet up with other C.S. children and he was a bit of a hit at our retreat.

It is with great sadness that we lost our lovely, brave Shane Suckley on 2nd July 2008. He had just turned 8 years old - he was a beautiful smiling angel and we will all miss him dearly.

Our hearts go out to his wonderful family, mum Carol, dad Bill and his two lovely sisters Naomi and Melissa.