My name is Taylor-louise, I was
born in January 2007. I was born with cataracts in both my
eyes which were removed when I was 4 weeks old. Soon after
I was diagnosed with Cockayne syndrome type2.
have had many difficulties in my short life, including
being very small, never walking/crawling or talking and
being tube fed. I am the happiest girl you will ever meet.
I love to smile at every one and have been told that I
give the best cuddles in the world!!!
I love my
Mummy and little brother Tymari and my nan watching over
me from heaven.. Thank you for reading my story <3
On 17th September 2012 Taylor left to become a beautiful shiny butterfly.
Taylor Louise, Our little friend won her fight against Cockayne
Syndrome and is now free to run and play in heaven.