Amy and Friends - Cockayne Syndrome Support Amy and Friends - Cockayne Syndrome Support
























Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.

 

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My name is Taylor-louise, I was born in January 2007. I was born with cataracts in both my eyes which were removed when I was 4 weeks old. Soon after I was diagnosed with Cockayne syndrome type2.

I have had many difficulties in my short life, including being very small, never walking/crawling or talking and being tube fed. I am the happiest girl you will ever meet. I love to smile at every one and have been told that I give the best cuddles in the world!!!

I love my Mummy and little brother Tymari and my nan watching over me from heaven.. Thank you for reading my story <3

On 17th September 2012 Taylor left to become a beautiful shiny butterfly.

     
Taylor Louise, Our little friend won her fight against Cockayne Syndrome and is now free to run and play in heaven.

   
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Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746