? Amy and Friends - Cockayne Syndrome Support

  My name is Taylor-louise, I was born in January 2007. I was born with cataracts in both my eyes which were removed when I was 4 weeks old. Soon after I was diagnosed with Cockayne syndrome type2.

I have had many difficulties in my short life, including being very small, never walking/crawling or talking and being tube fed. I am the happiest girl you will ever meet. I love to smile at every one and have been told that I give the best cuddles in the world!!!

I love my Mummy and little brother Tymari and my nan watching over me from heaven.. Thank you for reading my story <3
 
On 17th September 2012 Taylor left to become a beautiful shiny butterfly.