Amy and Friends - Cockayne Syndrome Support Amy and Friends - Cockayne Syndrome Support
























Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.

 

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  This is Vhebi, his mum found that there were other CS sufferers when he was 21 so here he is with Jonathan Haigh's mum - Christine - at his first retreat (age 21).  He had a wonderful time flirting with Josie and felt totally at home with his friends.  His mum Liz was overwhelmed after waiting so long and after visiting so many countries worldwide that here we were on her doorstep.  Vhebi - you are one cool guy!!

   
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Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746