Danielle was diagnosed when she
was 6 ½ years old in June 2010. She weighed 6lbs. 10oz.
and was a full term baby. At 11 months she was still
unable to seat up on her own or walk. She started to get
therapy services at 11 months and still is receiving
services from Speech and Physical Therapy.
started attending school at the age of 3. She weighs about
28-30 lbs and is about 3 feet tall. Danielle is non
verbal, but is able to communicate with sign language.
Danielle had seen several specialist before being
Danielle wears hearing aids in both
ears,glasses, AFOs and uses a walker and gait trainer. She
loves babies and animals.
Danielle likes playing wirh balloons and likes to be outside, but
with her syndrome she is limited to just a few minutes out in the
sun. She loves school.. of course because everyone stops her to
give her hugs or just say hello. We have met a lot of new friends
with the same syndrome and are blessed to have all the info that
was provided to us.