Michael Sampson is 27, and grew
up in Southborough, MA with 2 brothers and 1 sister.
he was younger, he LOVED playing baseball, football and
riding and building go-carts. He is the number 1 fan for
the Boston Red Sox, he knows every player's name, and has
never missed watching a game.
Mikey has a huge heart, and
you'll always see him with a smile on his face! He loves
listening to music, very loudly! Some of his favorite band
are; VanHalen, Aerosmith, Michael Jackson, Ozzy, and MANY
Mikey was diagnosed with Cockayne Syndrome
when he was 24. Since then, he has been in and out of the
hospital more times than I count, but he stll has a HUGE
smile on his face.
He went on the CS retreat to Texas in
2010, and he had the time of his life meeting all of the
other CS kids!
Mikey is an awesome person, a
wonderful son, caring brother, and sweet uncle to his
niece. We all love him very much!
Our little friend won his fight against Cockayne Syndrome and is
now free to run and play in heaven.