Penny was born July 2013, weighing 4lb 5oz.

She had feeding problems and gastric reflux. At 5 months she was hospitalised in high dependency with a collapsed lung. All caused by a common cold. Then we noticed her eyes were wobbling (Nystagmus)

Penny was diagnosed at two years old with Trichothiodystophy, Cockaynes Syndrome and XPD. She’s registered visually impaired, can’t walk or talk, has a substantial hole in her heart, curvature of the spine and failure to thrive.

Despite all her challenges Penny is the happiest little girl with the biggest smile and most infectious giggle. She spread her joy and happiness to everyone she meets ?



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