Ryan Peter Spagnoletti was born on 13 June 2003, 7 weeks early and weighed 1.6 kgs.

Ryan has increased muscle tone so is unable to walk or crawl but gets around in his own way.
Ryan wears glasses and hearing aids and gets fed by a mic key.

Ryan is very happy and social and loves to be on his bike or building blocks.

Ryan lives in cape town ,south africa with his parents and his brother Matthew who also has CS.

On 10th July 2012 sweet Ryan gave up his brave fight against this illness and flew to heaven to join his friends. Will remain in our hearts forever until we meet again tiger xxx

Ryan Spagnoletti, Our little friend won his fight against Cockayne Syndrome and is now free to run and play in heaven.



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