• 0 ‘Do It For Danny’ first event is on 15th December 2018

    • Events
    • by Administrator
    • 22-10-2018

    ‘Do It For Danny’ first event is on 15th December - Moose Hall, Pentwyn Road, Blackwood, Gwent NP12 1DN. 7.30pm £3 per ticket - evening includes raffle, bingo, tote and auction.

  • 0 Sunday 28th October 2018 Whitewater Rafting

    • Events
    • by Administrator
    • 03-10-2018

    Sunday 28th October 2018 at 1pm a team of 14 heroes take up whitewater rafting to raise funds for Amy and Friends!  Come along and watch/show your support at Bala Whitewater Rafting Centre!

  • 0 Friday 23rd November 2018 Bingo

    • Events
    • by Administrator
    • 03-10-2018

    Friday 23rd November 2018 7.30pm bingo at Eryrys Church hall - everyone welcome!  Bingo book £5!

  • 0 Ben Hughes has been awarded the Princess Diana Award.

    • News
    • by Administrator
    • 10-09-2018

    Ben Hughes has been awarded the Princess Diana award for his outstanding contributions towards raising awareness and fundraising for Amy and Friends.  

  • 0 ANNUAL SCIENTIFIC / FAMILY CONFERENCE 2018

    Amy and Friends 11th annual conference took place at Carden Park Hotel, Cheshire.  Families came together from far and wide across the world to share love, laughter, tears and valuable time making memories.

  • 0 Amy and Friends - in conjunction with Guy’s and St Thomas’ Hospital and NHS England

    • News
    • by Administrator
    • 10-09-2018

    Amy and Friends -  in conjunction with Guy’s and St Thomas’ Hospital and NHS England are beginning work in establishing a multidisciplinary clinic for children and young people who suffer from Cockayne Syndrome/TTD.  We have worked so hard over the last 7 years and are delighted with this outcome!

  • 0 White Water Rafting Event

    • News
    • by Administrator
    • 10-09-2018

    A group of wonderful crazy people are taking part in a white water rafting event in October to raise funds!  Good luck everyone! 

  • 0 The People's Projects Please Vote for Amy and Friends

    • News
    • by Administrator
    • 13-04-2018

    The People's Projects gives you the chance to decide how National Lottery funding can make a difference in your local community. The projects are revealed! Voting opens at 9am on Monday 16th April 2018. A share of up to £3 million of National Lottery funding is up for grabs. With 95 organisations shortlisted across the UK, we want you to vote for the projects you would like to receive funding. Groups are competing for up to £50,000 of funding to improve the lives of people in their communities. Please Vote for Amy and Friends by clicking the image below remember voting doesn't open until 9am Monday 16th April 2018, Thankyou!

  • 0 Worldwide Afternoon Tea

    • News
    • by Administrator
    • 21-02-2018

    PLEASE SHARE.....Can you believe it’s nearly March! Just a reminder that our worldwide afternoon tea takes place on 2nd June 2018. We are extremely happy that so many of you are taking part! If you are also interested - all you have to do is hold an afternoon tea party/we will send you some of our leaflets and you can help raise awareness and money to help our children and families ❤️ Thank you for helping us to ‘make a BIG difference to little lives’ ❤️

 



 
 
Privacy Policy - Cookie Policy - Terms & Conditions